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Independent governance committee

Guardians of responsible innovation

IDHea’s data governance and access committee is comprised of impartial experts in relevant fields. They establish the criteria to apply when considering research and development uses for IDHea data and make access request decisions accordingly. 

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Independent oversight for responsible data use

The data access and governance committee forms the cornerstone of IDHea’s commitment to ethical and responsible data use.

Composed of independent experts in medicine, technology, policy and ethics, the committee ensures that every data access request aligns with our rigorous standards. Their impartial guidance guarantees that sensitive information is shared responsibly and with a focus on advancing healthcare innovation.

Upholding transparency and accountability

Transparency is integral to the committee’s operations.

Each data access decision is carefully evaluated against IDHea’s policies, and the committee documents its findings to ensure clear accountability. This process fosters trust and integrity in every collaboration.

Driving ethical innovation

By balancing the needs of researchers with the rights of data contributors, the committee promotes innovation without compromising ethical principles.

Their work ensures that shared data advances scientific discovery while protecting privacy and upholding the values of fairness, equity, and inclusivity.

Members of the data access and governance committee

A select group of distinguished leaders committed to supporting AI innovations in a safe manner.

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Aaron Lee

MD, MSCI

Professor & Vitreoretinal Surgeon, Dept. of Ophthalmology, Univ. of Washington; Chair, IT Steering Committee, AAO​

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Anthony Khawaja

PhD, Chair

Professor, Univ. College London, Ophth. Consulting Surgeon, Moorfields Eye Hospital: Lister Institute Fellow​

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David C. Rhew

MD​

Global Chief Medical Officer, Microsoft; Adjunct Professor, Stanford Univ.; Former Chief Medical Officer, Samsung​

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Genya Dana

PhD

Chief Development Officer, BioMADE; Previous leadership positions at US Dept. of State and World Economic Forum​

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Jost Jonas

MD

Chairman Emeritus, Dept. of Ophthalmology, Medical Faculty Mannheim, Heidelberg University​

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Nadia Waheed

MD MPH, Vice-Chair

Professor & Vitreoretinal Surgeon, Dept. of Ophth., Tufts Univ. Medical Center; Chief Medical Officer, Ocular Therapeutix​

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Wen Hwa Lee

PhD​

CEO & Chief Scientist, Action Against Age-Related Macular Degeneration (AMD); Chair, UK INSIGHT Data Trust Advs’y Board​