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INDEPENDENT GOVERNANCE COMMITTEE GOVERNANCE COMMITTEE Independent governance committee TRANSPARENT POLICIES AND PROCEDURES POLICIES AND PROCEDURES Transparent policies and procedures SECURE COMPUTING INFRASTRUCTURE COMPUTING INFRASTRUCTURE Secure computing infrastructure
BACK BACK Back INDEPENDENT GOVERNANCE COMMITTEE GOVERNANCE COMMITTEE Independent governance committee TRANSPARENT POLICIES AND PROCEDURES POLICIES AND PROCEDURES Transparent policies and procedures SECURE COMPUTING INFRASTRUCTURE COMPUTING INFRASTRUCTURE Secure computing infrastructure

Transparent policies and procedures

Transparent policies guiding the decisions

Transparency and accountability are pillars of our mission. Our policies and procedures outline the processes that guide our work in facilitating secure and ethical data sharing. By adhering to these rigorous standards, we ensure the protection of sensitive information, maintain compliance with applicable laws, and uphold the trust of our stakeholders.

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Data access request process

Quick and easy data access:

Approved request register

Our Approved Request Register provides a public record of research applicants who have been granted access to data. The Request Register is updated regularly, as part of our commitment to transparency about who is given access to data, and how that data is used for patient benefit.

OrganizationProject titleProject typePrincipal investigatorRequested datasetsApproval date

Note: Approved requests will be posted to this list within 90 - 180 days of approval and project initiation within IDHea. 

Policies and procedures

The Data Access and Governance committee has approved the following policies and procedures:

04.23.25
04.30.25

Data access and governance committee proceedings

As part of our mission to operate with transparency, we provide the following documentation on the decisions and actions of the Data Access and Governance committee: